This Saturday, September 19th, beginning at 10 a.m. is the first 5k run/3.5k walk, A Cure in the Nick of Time, in honor of young Duxbury resident Nick Curran. Nick is fighting Batten Disease and 100% of the proceeds for the race are going to the Beyond Batten Disease Foundation (BBDF) for research.
Nick, now 23 years old, was one of the most loved students at DHS during my time there. He is the youngest of three children- he has twin older sisters, Jess and Steph, who also attended DHS.
Nick was diagnosed with Batten Disease at the age of nine. Batten Disease is a lysosomal storage disease (LSD). Anyone from our high school who took biology remembers the rhyme that reminds us lysosomes are the garbage men of our cells. If the garbage men, or lysosomes, are functioning properly there is a buildup of intracellular waste in the brain and central nervous system. Overtime, the affected cells begin to die causing progressive neurological impairment including seizures, visual impairment or blindness, personality changes, dementia, and loss of motor skills including the ability to walk, talk and communicate. Eventually, after becoming completely incapacitated, sufferers of this horrible disease pass away, usually in their early twenties.
As of yet, there is no treatment for Batten Disease. Symptoms can be managed, but nothing can reverse or even stop the disease from taking hold.
Let's all rally around Nick Curran and his amazing family this weekend and raise some money for research! 100% of the proceeds will go to the Beyond Batten Disease Foundation (BBDF) for research.
Registration begins promptly at 9 a.m. at Duxbury High School. The course is the scenic Powder Point Loop beginning and ending at the high school. Runners and walkers of all ages and abilities are welcome and awards will be presented to top finishers. A raffle will be held in the high school cafeteria following the event.
Youth (Under 13 years old): $15
Pre-Registration will close Saturday, September 12th
If you can't make the run/walk, please click here to donate to the cause!